We have been blessed to not have had a shunt failure since Norah left the hospital last August. I know that at some point it will fail, that is just the facts. I also feel a constant strain/battle within between being Norah's mommy and being a RN in an ER. There are times when I want to pick her up and run to the ER, then the nurse in me say step back, look at all the symptoms what makes sense. It's a mixed blessing at times. I can remember Norah being in the NICU and getting her first dose of vanco to help prevent any infection from her incision leaking CSF. I knew she was developing Redman's reaction, yet she received two more doses with a worsening reaction before I could get anyone to pay attention. I hated feeling not in control. In that moment I didn't ever want to leave Norah side for a minute, she needed me there to be her mom and advocate. I also dislike it when staff thinks I know something because I am a nurse and don't properly explain things. This is my child, I am currently not working, the brain is processing things differently and my husband needs to understand as well.
Alright enough with my vent.