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Hi I’m Jen- I'm one lucky lady to be married to the most wonderful man, Jason. I am a mother to three beautiful children, Grant, Norah, who was born with hydrocephalus, and Mason. I love spending my time with my family. I also like to challenge myself with new things. I'm on a constant quest to become more organized, it may never happen but it's a dream. I currently work part-time as a RN in an emergency department. I love this journey of life that I am on with God by my side, knowing that all things are possible when you Believe.

Thursday, September 1, 2011

Hydrocephalus Awareness Month

Welocome to September! This is Hydrocephalus Awareness Month.

Facts about Hydrocephalus:

•1 million people have hydrocephalus in the US.

•There are 180 different causes.

•There is no cure and very little research. The NIH spends 60 cents per person with hydrocephalus per year compared to $300 per person per year with Juvenile Diabetes though the prevalence of the disease is the same.

•The standard treatment, a shunt, was developed in 1952 and has a 50% failure rate after just two years which is the reason so many have to have multiple brain surgeries just to stay alive.

•60% of children with hydrocephalus are not independent as adults and require assistance.

•50% of children with hydrocephalus score 80 or below on standardized intelligence tests.

•It costs the United States $1 billion per year in health care costs to treat hydrocephalus.

Norah asks you help her raise awareness for hydrocephalus.

1 comment:

Spina said...

I have seen many of children with hydrocephalus and here in south africa johannesburg we don’t have the hydrocephalus association, maybe you can help.