Hi I’m Jen- I'm one lucky lady to be married to the most wonderful man, Jason. I am a mother to three beautiful children, Grant, Norah, who was born with hydrocephalus, and Mason. I love spending my time with my family. I also like to challenge myself with new things. I'm on a constant quest to become more organized, it may never happen but it's a dream. I currently work part-time as a RN in an emergency department. I love this journey of life that I am on with God by my side, knowing that all things are possible when you Believe.
Jason and I brought Norah to North Carolina this week. We are here for a second time for a cord blood infusion for Norah for her cord blood we saved at birth. We were here in early September for Norah first infusion. After that infusion, Norah perked up and just came alive. We have watched her achieve more than some doctors thought she would ever do and just want to give her the opportunity to become her best.
Norah and her daddy, cuddling while we wait.
Today we went to Duke University Hospital for Norah's screening and checkup. Norah weighed in 15 lbs 4 oz, she hasn't gained any weight from last weeks appointment. I'll just hope this scale is calibrated lighter and maybe she has gained a little weight. Then time for her blood to be drawn, my least favorite part of our day. Six tubes of blood needed to be drawn, yikes! After the phlebotomist looked for his spot, I switched into nurse mood. I held my little girl down like I hold down babies in the ER when I have to start an IV or draw blood samples. First stick, blood returned immediately, yeah! That was until the tube was filled and the next inserted, at the moment I saw Norah's vein blow, bummer. He left and found the lead phlebotomist to draw Norah. After several minutes of looking and warm packs applied to one of her ankles, here comes the second poke. After one repositioning of the needle, the tube quickly began filling, yeah getting another person to look and that took her time was a good thing! As soon as the tube was switched, Norah's vein blew, not again. You can see how the rest of the lab draw went. At one point I had to stop myself from grabbing the syringe trying to adjust it for the phlebotomist knowing that's how I would do it. Four pokes later, with only four of the tubes filled, we were sent home with one unhappy little girl and knowing more pokes will happen tomorrow to get an IV and the rest of the blood.
Norah was much happier after eating and a nap
Tonight we are praying that Norah infusion goes well tomorrow. We pray that her stem cells will continue to heal her and help improve her development.