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Hi I’m Jen- I'm one lucky lady to be married to the most wonderful man, Jason. I am a mother to three beautiful children, Grant, Norah, who was born with hydrocephalus, and Mason. I love spending my time with my family. I also like to challenge myself with new things. I'm on a constant quest to become more organized, it may never happen but it's a dream. I currently work part-time as a RN in an emergency department. I love this journey of life that I am on with God by my side, knowing that all things are possible when you Believe.

Wednesday, October 5, 2011

Continuous EEG

For the next 72 hours, this is the look Norah is sporting.

A little fuzzy I know, but that smile melts my heart.

Norah is undergoing a continuous EEG to see if there is abnormal brain activity that may be causing some of her episodes (remember those ones that we started experiencing about 9 months ago with the tired days, head frequently on the ground, followed by vomiting, irritability and a sleepy girl). I am frustrated with the medical system that is so far behind. We had to find a new neurologist, because our old one left. The hospital was treating Norah as a new patient thus delaying her care. Had we been able to have this done back in April and May when Norah's symptoms were at their peak, it may have proved to be more helpful. Lately,  Norah's "off" days seem to be further apart between episodes and for that I am thankful.

Hiding under her scarf are 20 electrodes that are hookup to the recorder in her backpack.
Thankful we are able to do this from home instead of at the hospital.
If I had to go with my gut I think Norah either has slit ventricle syndrome (SVS) or is experiencing migraines. Getting a doctor to diagnosis SVS is difficult, and treatment for migraines is someone as young as Norah is giving her a daily medication to see if we see a change. There are two options for medications, the first is an antihistamine and the other a beta blocker. I vote for no medications at this point, or seeking out an alternative therapy. Hmm, lots of thoughts swimming around, so will stop there tonight. Hopefully, I will find Norah with all her electrodes still attached in the morning.

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