Hi I’m Jen- I'm one lucky lady to be married to the most wonderful man, Jason. I am a mother to three beautiful children, Grant, Norah, who was born with hydrocephalus, and Mason. I love spending my time with my family. I also like to challenge myself with new things. I'm on a constant quest to become more organized, it may never happen but it's a dream. I currently work part-time as a RN in an emergency department. I love this journey of life that I am on with God by my side, knowing that all things are possible when you Believe.
Norah has been a busy girl. Two weeks ago, she went to her 18 month checkup with Dr. Swietlik, her pediatrician. She proudly displayed her language skills. This sweet little girl is talking our ear off. She has no problem letting us know what she's after. She also was reading her picture books, flipping through the page and naming off pictures. Norah continue to struggle with weight gain, even more now that she's more active crawling, cruising and climbing to wherever she thinks she should (even if she shouldn't). We gone back to giving Norah pedisure everyday. We had stopped because bedtime was becoming early and early, there was enough time between supper and bedtime to get it in. We have been giving it to her when she gets up at 6 am (everyday, like clockwork). She drinks it down and still is ready for breakfast an hour later. Norah finished her appointment getting to vaccines and a blood draw to check her hemaglobin and lead levels, she hates those pokes. Grant brought his teddy bear, Curly to the appointment along with his doctor kit and mirror Norah's examination on Curly. He listened to his heart, checked his eyes and ears, and gave him shots - definately cute!
Last week, we all went to Norah's appointment with Dr. Lew, Norah's neurosurgeon. Norah's head circumference has began to grow along a growth curve, instead of plumeting off the growth charts. He is happy to see how well she is doing. The only concern is her development of a Chiari malformation. She isn't showing any signs that it is causing any problems currently. The plan is to have another MRI in August of Norah's head and spine to see how the shunt is functioning, check on the Chiari and make sure there isn't any CSF accumulating along Norah's spine.
The continued concern is Norah's gross motor skill development, primarily balance and walking. Norah continues with physical therapy once a week. She has stalled with making progress at home, so we are now going to Curative's site to see if we can get Norah moving. So far she seems to be happy going there so I hope we see some more positive changes.
These fantastic appointment leave Jason and I snuggling on the sofa talking about how blessed we feel. We were given such a bleek outlook for Norah's development, we mavel at God's work, knowing He does amazing things and being blessed with one of his miracles.